This is Jake's Story...

Jake is a 20-year-old twin who has been diagnosed with stage 4 Rhabdomyosarcoma, a very rare form of cancer. Going through a vigorous daily radiation treatment and weekly Chemo treatments make him extremely tired, weak and sometimes nauseous.

Jake is otherwise a normal teenage kid. He likes playing computer games, paintball, swimming and golfing. He loves hanging out with his four brothers, 4 wheeling, camping, and ruining his mom's laundry baskets while making home videos. He hopes to someday become a computer programmer.

This blog was started to keep his family and friends updated on his status.

Addendum: Jake became cured of cancer, free of pain and everything this world brings on September 29, 2010. He continues his journey in Heaven. He is doing awesome! Hope you're doing the same!

His family thanks you for your generosity in donations, love and service. God has shown us many tender mercies!
Thanks for being one of them!





Monday, June 20, 2011

What the doctors said...

Very apprehensive approaching this day!  The first appointment was with the Hem/Onc doctor.  She wanted to show us the CT/MRI/PET scans so we could see what the tumor looked like on film.  Sigh...not so pretty.  You could definitely see that the tumor was live and doing well...stupid cancer!!!

The second doctor we saw was the Urologist.  He looked at the scans and felt the tumor under the skin.  He is going to get a couple of other doctors involved.  He told us that the tumor needs to be removed (not sure why they didn't try to do this before).  I think they wanted to shrink it as much as possible first.

We were hoping that some more radiation would do the trick (less invasive), but it doesn't look like that is going to be an option.

Jake will have to have a skin graft (probably from the back of one of his thighs).  The doctor is very hopeful that everything will work out smoothly, but said it is too hard to know what is really going on until they actually open him up.  They are looking at about a 5 day hospital stay...maybe as early as next week.  He will need some reconstructive surgery, most likely.  Then it will take him at least a month of taking it very easy.

Bleh!

Wasn't expecting this!  Please pray they can remove this easily!

What I know is that everything happens for a reason.

What was normal like, again?

2 comments:

  1. WE LOVE YOU!! It's going to all work out... why? Because he is in GODS hands!!!

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  2. Good luck Jake! I've had a few cancer scares in the past but doctors haven't figured out why I just never heal. I have had seven wrist surgeries so far in the past year and a half and so far my skin just will not heal! It just keeps ripping and when I got a skin graft it just died and got infected which landed me in the hospital... Surgeries and being sick are not fun and I can only imagine what Jake Is going through! I can somewhat empathize with him & I will deffinately be praying for him and your family :)

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