This is Jake's Story...

Jake is a 20-year-old twin who has been diagnosed with stage 4 Rhabdomyosarcoma, a very rare form of cancer. Going through a vigorous daily radiation treatment and weekly Chemo treatments make him extremely tired, weak and sometimes nauseous.

Jake is otherwise a normal teenage kid. He likes playing computer games, paintball, swimming and golfing. He loves hanging out with his four brothers, 4 wheeling, camping, and ruining his mom's laundry baskets while making home videos. He hopes to someday become a computer programmer.

This blog was started to keep his family and friends updated on his status.

Addendum: Jake became cured of cancer, free of pain and everything this world brings on September 29, 2010. He continues his journey in Heaven. He is doing awesome! Hope you're doing the same!

His family thanks you for your generosity in donations, love and service. God has shown us many tender mercies!
Thanks for being one of them!

Friday, June 25, 2010

Jake Update 6/25

We woke up about 4:45 a.m. and took Jake up to the University of Utah hospital to have a piece of his lymph node removed for more biopsy.  One of the nurses told me it would take at least a week to get any results.  I was devastated (the first ones only took 12-24 hours)!  They also told me the operation would probably take a little over an hour.  I'm thinking, seriously!  How hard could this be!  They made us come 1 1/2 hours before the procedure even started.  We were waiting in the room an hour before the procedure started.  I asked the nurse what they were going to do for an hour and she said, "Oh we'll take his vitals and the doctor will come in and talk to you."  So they took his vitals (3 minutes max) then said, "Ok, the doctor will come in and see you in about 1/2 hour"  Apparently, this is standard patient waiting torture...I mean procedure.  If you don't wait for at least 30 minutes that can't bill you for as much time.

The good news is the procedure only took 1/2 hour.  It took him over an hour to wake up, but he is doing fine.  Dr. Nelson said they should know something by Monday and they took 1/2 of his lymph node, froze some and gave the rest to Pathology to start running the tests right away.

I'm happy because we are not at a stand-still any more.  Things are moving along again and we are getting closer to knowing what the treatment plan is.

I apologize for not calling everyone.  You are welcome to call me if you don't want to check the blog.

We appreciate your thoughts and prayers!

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