This is Jake's Story...

Jake is a 20-year-old twin who has been diagnosed with stage 4 Rhabdomyosarcoma, a very rare form of cancer. Going through a vigorous daily radiation treatment and weekly Chemo treatments make him extremely tired, weak and sometimes nauseous.

Jake is otherwise a normal teenage kid. He likes playing computer games, paintball, swimming and golfing. He loves hanging out with his four brothers, 4 wheeling, camping, and ruining his mom's laundry baskets while making home videos. He hopes to someday become a computer programmer.

This blog was started to keep his family and friends updated on his status.

Addendum: Jake became cured of cancer, free of pain and everything this world brings on September 29, 2010. He continues his journey in Heaven. He is doing awesome! Hope you're doing the same!

His family thanks you for your generosity in donations, love and service. God has shown us many tender mercies!
Thanks for being one of them!





Friday, November 19, 2010

Chemo: Week 19

Jake is telling me to quit taking pictures of him.


Well, it has been a long week...for me.  We were suppose to go in for chemo on Tuesday, but they asked us if we wanted to wait until Wednesday.  We had an appointment with the Radiology doc, which was not very productive. She made us very late for chemo.

Jake hates the overnight stays at the hospital so we inquired as to the possibility of him not having a hospital stay, but just getting chemo in the clinic.  We would have to stay all day, but that's a lot less time than staying over night.  They are going to try it on our next scheduled overnight stay.  We'll see how it goes!

The best news was that Jake gained a couple pounds!  He is really trying to eat more so he can heal faster!  He still has some color in his face from his last transfusion...oh maybe I didn't mention that.  Jake's counts were critically low a couple weeks ago.  His skin was so pale!  The nurse said he needed to come in for a transfusion on Friday, so since Dave was home, I let him have a turn doing the Jake-hospital bonding time.  They gave him 3 liters of blood instead of 2 and topped it off with a bolus of platelets.  Unfortunately, Jake spiked a fever while he was at the hospital so they made him stay overnight on a regimen of antibiotics.  Jake called me and begged me to get the doctors to release him to home.  He said he hated the food, so I made him a sandwich and some jello (his request) and made the 45 min. drive up the the hospital to comfort my poor Jakey.  I had to drive home in a big snow storm and only 2 hours sleep the night before, but Jake's worth it. 

 Here is Jake, who wasn't happy because he just threw up the yummy sandwich I had brought him from home.

Chemo continues to damage Jake's body.  He continues to have more numbness in his hands and feet and is losing a lot of strength. He's trying to stay upbeat, but the treatments are getting tiring for all of us. (sigh!)  The doctors and nurses keep encouraging us to stay strong and the prayers are really helping, so thank you, all!  

Next week will mark the half way mark of chemo treatments.  April 12, 2011, is the last schedule chemo treatment.  That will be my new favorite day! (Happy thoughts!)

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